Savannah Logsdon-Breakstone on Cracked Mirror in Shalott has written "Decolonizing Our Voices":
Today is Autistics Speaking Day,
a day when we are particularly asking our allies and allies-to-be to
step back to allow the voices of Autistics ourselves to be heard and
listened to.
When ASD started last year (2010) we
were in essence protesting an “awareness” campaign that people who
purported to be our allies had designed and promoted with heavy pity
language. They had asked people not to post at all, to be silent and
non-speaking online to draw attention to the communicative issues many
Autistics face. I believe our response was pretty understandable not
only was this basically online “crip drag,” but it also denied the fact
that for many Autistics, online resources such as social media sites
have given us a voice.
I myself had great strides in my personal development after getting
online. I know a number of people who are Non-speaking Autistics whose
ability to communicate was greatly augmented by online resources, and a
number whose involvement in virtual advocacy have made the people around
them rethink everything about their care. In short, Social Media and
other virtual resources have done for us what having a ramp in a public
building does for our chair using brethren. (I will freely admit that it
doesn’t solve all our problems, and we still face hostility online and
off that prevents access just as having a ramp alone doesn’t make your
building wheelchair accessible.)
This year, Autistics Speaking Day is taking place at a time when we
have people in the streets protesting economic disparity and corruption.
For some of the protesters, there are harsh economic realities in their
own lives motivating them- Homelessness, lack of accessible health
care, and unemployment. Others feel that their voices as citizens have
been infringed upon by corporate interests, particularly when it comes
to our elections in the United States. Still others are driven by a need
to undo injustice.
This movement of protests is popularly called “Occupy Wall Street,” so named for the action of camping- or “occupying”- public places such as Zuccotti Park in NYC or Mellon Green in Pittsburgh, or a wide number of other Occupying sites. However, a number of indigenous groups quickly pointed out that Wall Street has been occupied for centuries- it was originally Lenape tribal land.
So when their site started, Boston issued a solidarity statement with Indigenous Peoples,
and were followed by a number of other sites. In light of this, some
people have been using the term “Decolonize” rather than “Occupy” so
that the voices of marginalized Americans- such as our indigenous
populations- can be better respected and more easily centered.
People of Color are especially hard hit by the economic environment,
and in a number of places the living conditions on reservations are
deplorable. People with Disabilities too are feeling the economic burden
our services are being cut, our programs redefined to limit our
involvement in our communities, and supports being withdrawn under the
excuse of “budget issues.”
After some thought, I’ve decided that there’s too much of a cross
over for me in the work of Decolonizing Wall Street and of our voices as
Autistics to not write this post today. While people in general are
seeing their demands of their political representatives co-opted or
diverted by corporations, Autistics routinely have our voices co-opted
by our allies and diverted by large “non”-profits such as Autism Speaks.
Many of us are frustrated by the lack of Genuine Voice that the general
public hears from us. Instead of looking at the things that help us
live our lives and improve the quality of it, research funding is sent
to projects that could potentially prevent us from being born in the
first place.
Indeed, when we speak we are dismissed using logical fallacies
so that the voices of those who proclaim themselves working for our
“own good” can be prioritized. Obviously, not all of our allies are like
this. But some are, be they parents, professionals with pet theories,
or Organizations whose bottom line would be effected by what we are
saying. Those are the ones we are talking about when we talk about how
our supposed allies need to step back and stop centering themselves.
The Protesters in the Occupy/Decolonize use consensus building as a
process. This does have flaws by itself- those with pre-existing
privilege can still flaunt it- but there are some principles that can
and at some sites are added to mitigate those flaws. One of them is the
concept of “Step back, Step up.” This means for people who have
privilege- white people, straight people, cis people, men, and so on- to
take a step back in the conversation, and to encourage those without
your privileges to step forward so that they can be heard- something
that won’t happen on its own. Without taking this into consideration,
the same hierarchies that divide us out in the world will be reproduced
in our movements.
This saying is the reason I’m bringing up the consensus process in
this post- because the conversations we are having in the Autism and
Autistic communities need to utilize the same principles. Otherwise no
matter how good natured and well meaning people are, those who have less
privilege will not be heard. And to me, this Principle is at the core
of what Autistics Speaking Day is about. It is about us being heard
when we try to step up, and about our allies supporting us doing that.
I’ve been involved from afar with the Occupy/Decolonize activities at
Pittsburgh, PA’s site, working especially with the Marginalized
Communities and Allies workgroup. The Safety workgroup took most of my
comments about safety concerns for PWD and added them to the safety
document. I’ve been encouraged to stay involved in the processes and
networks being formed.
Most encouraging to me is that our site’s working groups have been
prioritizing ways for people who can’t stay on site to be involved.
Instead of the sentiments that if you aren’t at an action you aren’t
really committed that have characterized some other movements I’ve tried
to be involved with, I have gotten reassurance. Paul O’Hanlon, a
protester with disabilities who has been very active both on site and
off, told me to remember that they know that every person there is
representing people who can’t.
That isn’t to say that there aren’t people who assign high value to
people on site. There are still people who fail to recognize that even
when we are eliminating our class barriers that our other oppressions
and privileges are still intact. There are still people who don’t get
the anti-ableism, anti-racism, and so on work is still very much needed.
But I’ve seen what feels like great strides. Objectively, perhaps they
aren’t that huge, but for someone who has had their
voice sublimated repeatedly it feels huge.
Just as as a young teen blogging, instant messages, and other
internet resources helped me to gain a sense of community and skills,
the internet is enabling me to be involved. I’m someone who has not
been able to physically be on site because of a number of reasons. I’m
rural, I have to have access to certain services on a regular basis that
would not be present on site, and I also have fibro Myalgia, which
would make winter camping a mobility and possible safety hazard.
So I’ve been doing support work, editing virtual documents, and
organizing accessibility work. I started a cross disability group called
“Occupy Disability/Decolonize Disability”
for people with Disabilities to network resources on both being on site
and working off site. A friend with Multiple Chemical Sensitivities
started #Occupy at Home to help people like us find ways to be involved. There’s even an “Occupy Autism Speaks” page to highlight the issues with that organization.
All of these things keep seeming to parallel to me the ways that
Autistics have built community online when our physical environments
have been barred to us. We’ve worked to create venues to be us in, to
see the value of our forms of communication. To be involved as we are,
not as others think we “ought” to be.
Today is the day we take back our voices. Now is a time when “The
Whole World Is Watching” what is happening. Tomorrow is when we will
continue to speak out- so please, keep on listening.
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