Thursday, November 1, 2018

Where Are My Adult Autism Supports, Dammit?!

Becca Lory Hector, CAS, BCCS, Where Are My Adult Autism Supports, Dammit?! on Geek Club Books.

Where Are My Adult Autism Supports, Damnit?!

As a woman diagnosed on the spectrum in adulthood, I struggle to find autism supports, period. But I am not alone, we, the adult autistic community, struggle as a group to find survival and quality of life co-existing anywhere. It’s a little shocking isn’t it? Especially with all the media attention autism gets these days, right? The reason why this giant gap continues to exist is still unclear, though much energy is expended passing blame and pointing fingers and dollar signs. Yet, as I sit here staring my 42nd birthday in the face, the reason why is not what I care about. I’m not looking for a long debate about who is responsible for what or what the newest absurd reason is for this giant void. What I am looking for is action. I need a plan. I need some funded resources. I need housing and employment solutions. And I need them now, in my lifetime, not when everyone is done “discussing” it. I am fed up and I am tired of asking, ‘where are my adult autism supports, dammit’?!
I am not much of a fan of complaining and I am definitely less of a talker and more of a doer.
Since my frustration level was at its peak with the issue of adult supports, or lack thereof, I decided to do something about it. Why should I sit around waiting and suffering while somebody else decides what supports I can I have, right? That idea is not only ludicrous but also a giant waste of my one non-renewable resource, time. It’s been said that the average lifespan of an autistic is 36 years. As I set two feet squarely in my forties, I am more aware than ever that I am I on borrowed time, and it is not a luxury I can afford to waste.
My earlier foray into the world of supports found me drowning in tools for mini-spectrumites, trying desperately to adapt them to adulthood. Not a total failure, as it eventually led me into the heart of mindfulness practice, where I found that the supports I needed, were the ones that appealed to me naturally. A strength-based approach to supports if you will; banking on my love for new information and an unknown enthusiasm. So when I next decided to tackle adult supports, I started by looking at my passions and strengths.
For me that meant, autism, animals, and the written word.

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